Ask the POTS Expert
Postural Orthostatic Tachycardia Syndrome is an autonomic disorder that is still not understood by the majority of physicians. It is a condition in which the body does not respond appropriately to changes in position. Therefore patients get used to episodes of tachycardia, or having their heart race, particularly when going from a lying down or sitting position to a standing one. Because the heart beats too fast during these positional changes it may leave patients feeling exhausted. The brain may not receive adequate oxygenation during these episodes and it can be difficult to perform normal activities of daily living.
Because most physicians are not looking for the symptoms of an autonomic dysfunction and even if the symptoms are uncovered, many physicians don’t know how to treat it, the disorder can be very stressful for both patient and family. This leaves many patients searching for answers. Often patients may be told by numerous physicians for years that they are “fine” or that it is all in their head. Some patients may find themselves waiting for years for an accurate diagnosis. There are a few “experts” in treating POTS but these physicians or the medical centers where they practice are located in various parts of the country, thus often times requiring patients to travel to be treated appropriately.
One well known POTS expert is Dr. Blair Grubb, whose article about Postural Orthostatic Tachycardia Syndrome is featured here. And, because I’ve been blessed to have met some of the greatest and bravest groups of patients ever, during our conversations on our POTS Discussion Group, Things That Helped Us Get Better, we have one of the members in our support group who now has a chance to visit Dr. Grubb’s office for an evaluation. Since many of us would like to be able to be seen by Dr. Grubb, we thought we’d ask our very generous support group member if she’d make a list of some questions that we’d like to know if we had a chance to see Dr. Grubb personally. We know she can’t ask all of our questions, but if you or a family member has POTS and you’d like to have your chance to “ask the POTS Expert” a question, please join the discussion below and ask the question you most would like to know about POTS, how to diagnose it best, how to treat it, or any other question you have about autonomic disorders that you’d like to know.
Now’s your chance so we hope you’ll join our discussion about POTS and ask your most pressing questions. What would you most like to ask Dr. Grubb if you met with him about POTS?
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